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Fun, fun…..
Peace out.
Tag Archive for 'family'
Today wasn’t a typical Monday…well, at least not “typical” for me. For some reason, I awoke before the sun…and just stayed up. By seven, I had done a couple of loads of laundry, taken a bath (because I was freezing in these frigid “below 70″ temps.! 
), and gotten the boys up and ready for school - just normal stuff…just not so normal for me on a Monday morning.
Then, we went with my sister and her boys (Ronin and Kael - mentioned in former post) to Epcot.
Ronin and Kael at Moss Park
We had a good time, although everything is harder for my sister, than for most, since Kael can’t get over-heated or it could cause a seizure. At one point, she showed me what I would need to do if he were to have a seizure - I really wanted to know…needed to feel a little more knowledgeable after yesterday. It was sobering, and I tried not to let my emotions take over - but, most of all, it felt good to know…it’s better than feeling so helpless.
When you have a child with such a serious condition, it definitely makes you more mindful of appreciating the little things in life…the good days. But, it’s also so extremely draining….so please continue to keep them in your prayers.
Then, Ronin came back home with us to play with his cousins…
….and now we’re ordering pizza and just letting them play.
So, it was a good day - I am beginning to feel my “early morning” - I guess because it’s Monday…I mean, I get up that early every Sunday…but somehow that’s different…
And another thing about all this adrenaline that I’ve been feeling since yesterday afternoon:
I NOW HAVE TO FOLD AND PUT AWAY THE 62 LOADS OF LAUNDRY I’VE WASHED IN THE LAST 24 HOURS!!!
Oh well….
…Monday, Monday!
(If you need me, I’ll be up to my eyeballs in laundry!)
Peace.
I’ve written about my nephew Kael, and his condition, before… (Here: “Please…”
and here:“To Whom It May Concern”).
Kael
….and today, as we celebrated his brother Ronin’s birthday, I was reminded to keep praying for Kael -
….to never stop.
I witnessed one of his seizures today, for the first time. It was horrific…
….and my sister and brother-in-law (Katie and Michael) deal with this reality every second of every day. It’s always life-threatening and potentially life-altering.
So, in the remains of this day, I’m simply asking that when you whisper your prayers tonight…please remember little Kael. Please…
I thank you from the deepest part of my heart.
Peace.
So, even though I’ve been trying to bribe her all day into telling everyone she’s only turning 13, (how am I going to be “29″, if she’s 16?…I’m just sayin’!!!),
Anyway…even though I’ve tried to suspend the hands of time, my youngest daughter, ASHLEY, is insisting on turning 16!!!!!!
Ashley came into the world having to be a fighter…and she still is. I love her wit, her toughness and her complete lack of pretense.
She’s a free-spirit, my Ash, and I’m so glad that she has never lost that….I still remember when she used to climb trees in her frilly dresses or beat up the bully (twice her size) that was hitting her big sister… .
Don’t ever lose your individuality or your love of all kinds of people without judgment, Ash. Your dad and I are so proud of the strong young woman you’ve become.
Happy Sweet Sixteen, Ashamaly - I’ll even sing to you if you want (I know how much you love that! ).
I love you so!
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